Vexed

I was going to update this yesterday but decided I had better not. It just would been a list of profanities. I called to check on the test results for Peyton. The nurse called me back and said she spoke with the neurologist and  her EEG was abnormal but they didn't see any seizures... Um excuse me what? ( Adam and I clearly saw at least 5 while she was sleeping over the three days and her previous sleep deprived EEG showed it was abnormal with episodes and where it was coming from ugh). So I said that doesn't make any sense to me. She is still having problems at night so what am I supposed to do? I was told to talk to her pediatrician. At this point I was irate. Are you freaking kidding me. It feels like because she doesn't fit into anybody's box of diagnosing no one is willing to take the time to help Peyton.( Thank heavens for her pediatrician who is amazing). I called her pediatrician who had us make an appointment for today. I told her the situation and what I was told. She and I agreed that there needs to be a second opinion. I was able to get her an appointment with an amazing neurologist in December. I am pretty frustrated at this point but also understand that it's part of the game. I am not going to be saying any specialists names unless someone asks me directly. I don't feel that they are necessarily doing a bad job I just feel like no one is willing to invest the time to help us get it figured out. So it's not the awesome Yay we got answers update I had hoped for but it's an update.