Here It Goes...

I honestly don't even know where to begin with this blog about this sweet girl. So I will start at the beginning.

Here is a picture of Peyton and I on March 1, 2013. She had just had her 6 month shots. (She had been sick so she was actually almost 7 months old). The next day on March 2nd she had her very first seizure. We had been at the mall all day and when I came home sat her on the floor to play. I went down stairs and when I came up, I saw my sweet girl having a seizure. After what seemed like forever but was probably only a minute or two, she stopped breathing and turned blue. I will never forget scooping her up screaming for Adam and meeting him halfway down the stairs and saying "she's not breathing". After handing her to him I ran to call an ambulance. I now know why they teach you in grade school what to do when you call 911. I just kept saying she's not breathing and giving our address over and over. By the time the ambulance came she was breathing again. They took her and I in the ambulance to the hospital. She was scheduled her first EEG a few days later. We meet with a neurologist who said that her EEG was normal and she likely had a reaction to the immunizations. She said that it wasn't likely that Peyton would have anymore seizures. I remember leaving that appointment feeling relieved but also feeling like this wasn't the end either. After that appointment it stared once a week Peyton would be playing and then all of a sudden she would just fall over and be like a rag doll and have a zoned look. Then it started happening more and more frequent. Her pediatrician wanted to be sure it wasn't her heart.

Once we got the results that everything was good with her heart it was back to Primary Childrens to meet with another neurologist. By the time her appointment came around she was having those small types of seizures a few times a day. We met with the neurologist I showed him the log of every time I saw peyton have a seizure. What she was doing, where she was ect. He decided that she needed to be admitted for a 3 day EEG at the hospital. 

  After those 3 days they were able to catch a seizure on the EEG. She was diagnosed with epilepsy. They said that is comes from the back left side. She has partial seizures. We were told that it is something that she may grow out of, kids do it all the time.  They put her on the medication Keppra. Other than having to up the dose every now and then she had done pretty well on it up until the past little while. She has begun having seizures at night. I knew that she was having problem sleeping so I mentioned it to her neurologist at an appointment. He was immediately concerned and ordered an EEG. When the EEG came back abnormal which we expected he then ordered a 3 day EEG at home with video.

Getting them on her this time was pure hell. When they do it at home they use this glue. To get the glue to dry quick a cold air compressor thing is used. She was screaming and crying. I was crying, her poor baby brother was crying (Thank you Courtney for coming to the rescue). Once it was on she did well keeping it on and loved her "backpack". I knew that she was likely having seizures at night but I didn't know that they were so frequent and pretty bad. She has also started have a different type during the day that are very subtle and quick. So now we are just waiting for the results. We should get them on monday. 

It kills me to have to watch this little girl go though all the things she does and she is only 2 years old. She is the sweetest little firecracker around. I started this blog to be an outlet and share her story, her everyday battle. To hopefully let other parents out there know that you are not alone, you don't have to do this alone. Epilepsy sucks and that is all there is to it.